Patient organizations
Focus on patients and relatives - that is the principle of Neuro Praxis Düsseldorf. The most important impulses for better care give us patients and their relatives. In the area of chronic diseases of the autonomic nervous system in particular, those affected become experts and managers of their disease over time. The quick help countermaneuvers, based on the wealth of experience of people with circulatory disorders, best document this. For some of the diseases that are associated with vegetative disorders, you can find contact here with patient organizations for the following diseases:
- Parkinson's disease
- polyneuropathy
- fibromyalgia
- Chronic pain
- Sudeck disease
Contact details
CRPS NRW Mobus Sudeck (Selbsthilfegruppe Nordrhein-Westfalen)
Dirk-Stefan Droste
Neusser Straße 112a
50670 Köln
Tel: 0221 3553383972
E-Mail: koeln@crps-nrw.de
Website: crps-nrw.de
Selbsthilfegruppe Schmerz Wuppertal
Walter Forth
42369 Wuppertal,
Tel: 01607 439647
E-Mail: shg-schmerz@wtal.de
Deutsche Fibromyalgie Vereinigung (DFV) e.V.
Waidachshofer Straße 25
74743 Seckach
Tel: 06292 9287 - 58
Fax: 06292 9287 - 61
E-Mail: info@fibromyalgie-fms.de
Leben mit Polyneuropathie
https://polyneuropathie-pnp.jimdo.com
Whats App Info-Hotline: +49 172 9 15 15 35**
Deutsche Polyneuropathie Selbsthilfe e.V.
Carl-Diem-Straße 108
41065 Mönchengladbach
Telefon: 02161 480499
E-Mail: info@polyneuro.de
Website: polyneuro.de
GBS Initiative e.V.
Oboensteig 4
13127 Berlin
Tel: 030 475995 - 47
Fax: 030 475995 - 48
E-Mail: info@gbs-selbsthilfe.de
Website: gbs-selbsthilfe.org
Deutsche Parkinson Vereinigung e.V. - Bundesverband
Moselstrasse 31, 41464 Neuss
Tel: 02131 740270
Fax: 02131 45445
E-Mail: bundesverband@parkinson-mail.de
Website: parkinson-vereinigung.de
Junge Parkinsonpatienten - Regionalgruppe Nord
Stefan Schaaf
Im Auelsgarten 11
53474 Bad Neuenahr-Ahrweiler
Tel: 02641 3968911
E-Mail: stefan@jupa-rlp.de
Website: jupa-dpv.de
Deutsche Reizdarmselbsthilfe e. V.
Postfach 70 02 18
60552 Frankfurt am Main
Tel: 06713 77886
Hotline: 01805 896106
Fax: 069 71377886
E-Mail: info@reizdarmselbsthilfe.de
Website: reizdarmselbsthilfe.de
Inkontinenz Selbsthilfe e.V.
c/o Matthias Zeisberger
Röttkenring 27
13053 Berlin
Website: inkontinenz-selbsthilfe.com
European Federation of Neurological Associations (EFNA) Training Iniatives for Neurology Advocats
Registered Address: EFNA, 11 Rue d’Egmont, B-1000, Brussels, Belgium.
Secretariat Address: Donna Walsh, EFNA Executive Director, 7 Cluain Alainn,
Newtown, Kildare Town, Co. Kildare. R51 HX45 Ireland.
Telephone: +353 87 983 0816
Skype: donna.walsh.86
Email: executivedirector@efna.net
Website: https://www.efna.net/tina/
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